• 0 Posts
  • 22 Comments
Joined 1 month ago
cake
Cake day: September 5th, 2025

help-circle

  • I love swimming for that reason yeah. I’d do it a lot more if I had easier access to a pool. I had been looking into places near me to go to but it’s hard to find times that work for it. Might get a little easier once the kids are a little older and we could take them easier.

    More importantly though, that’s not being the people in the joke. It might not feel like it, but there is a big difference between seeing someone struggling with a limitation that you also struggle with and offering something that helped you, and someone who has no idea what you’re going through pulling a suggestion out of their ass and making it sound easy. It hits different when your suggestion comes from a place of seeing a shared struggle and mentioning what helped you.



  • This is probably the worst part mentally about chronic joint pain for me. i want to be active, I want to lose weight, but I’m sitting here maxing out what I can physically handle just doing my everyday stuff. On a GOOD day I get about 3k steps in and I’m feeling it for days after. It’s so goddamn demoralizing.

    Then in my case I’m also taking care of my partner whose health has been declining and 3 autistic kids. It feels like I’m barely keeping up.





  • I couldn’t tell you exactly what it is about it, but my Gods migraine pain is the absolute worst for me. I could be at like an 9/10 with my joint pain unable to put even a little weight on like my ankle, and that doesn’t bother me nearly as much as like a 7/10 migraine. I imagine it’s probably got something to do with the secondary symptoms and how inescapable the pain is. But I’m not sure. I do know I wouldn’t wish them on my worst enemy though.











  • I know that you’re trying to help, and I appreciate the sentiment. But that advice is literally meaningless.

    Build a company? Doing what? I’ve got 3 autistic kids with varying levels of developmental disability, a partner who we just discovered has a pituitary tumor that’s causing her to have episodes where she loses large chunks of her memory for hours on end or “just” become so dizzy and disoriented that she can barely walk unassisted, and I’ve got chronic joint pain which makes it to where I can barely manage to take care of everyone else along with myself.

    We live off government assistance and my partner’s disability benefits. So we have draconian asset/income limits we have to live within to not lose food/housing money. Like several months ago we got approved for an extra like $300 a month for our oldest because of his disability and we immediately lost roughly $250 dollars a month in benefits. We get in trouble for having more than like $3,000 in assets.

    We know a handful of other disabled people in the area and we all try to help each other where we can but “where we can” is very few and far between. We’re all barely holding it together out here as it is. We just don’t have the resources.