Hi, I saw some other AMAs on here, so I hope it’s ok to post one too, otherwise I’ll gladly remove it.

I’m a 23yo trans woman and I have Hypersexuality, formerly known as nymphomania. I’m attempting to get an 6C72 Diagnosis under the ICD-11, although it’s unlikely I’ll get one soon.

Hypersexuality combines a high sex drive with a compulsive behavior disorder (to make it clear: high sex drives alone does NOT equal hypersexuality). Due to this, a lot of my life revolves around sex and intimacy. As it’s a disorder, there is also a certain level of distress that comes from it.

Feel free to Ask Me Anything! No questions are off limits! I’ll try to answer everything as soon as possible

  • Chairman_Meow@lemmynsfw.com
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    20 days ago

    I think the point is rather that self-diagnosis is notoriously unreliable. That’s not to diminish what you’ve experienced, but you’d hardly be the first to be told you “have some symptoms, but to qualify for a full diagnosis they’d have to be significantly worse”.

    It’s died down a bit now, but there was a whole “undiagnosed mental disorder” craze on social media for a while, with loads of people claiming they had some kind of one-in-ten-million disorder. And of course in their videos they’d exhibit the symtoms but eventually they either were found out to be outright lying, or some had to be told by doctors that what they were doing didn’t qualify as a mental disorder.

    Again, not trying to minimize what you’re experiencing of course (and I definitely don’t think you’re lying or anything like that). You seem very genuine in your answers and your experiences seem genuinely debilitating. But I don’t think anyone here is qualified to actually determine whether your self-diagnosis is actually accurate.

    Imagine, in a few months time an expert sits down with you and points out XYZ that would actually suggest you don’t have this disorder (but perhaps something else) or it’s not so severe to warrant a diagnosis, even if it’s debilitating to you (e.g. “someone with hypersexuality wouldn’t be able to not kiss someone hovering next to their face at all”, or something). Everyone coming across this post won’t be told about that, and people may either relate with your experience, and then possibly wrongly believe they have it too, or maybe someone who does genuinely have it may not relate to your experience and wrongly believe that they must be suffering from something else.

    Your experience is still interesting (and real, not trying to undermine you here), and so is this AMA. I can also understand your gripes with the medical system. But for caution’s sake, it’d be wise to not outright state you have hypersexuality (even if I believe you probably do), but rather are likely suffering from it, or that you’re in the process of getting diagnosed for it. All still true statements, and they don’t detract from what you’re going through, but structured such that it won’t by accident cause someone else to believe they have or haven’t got it too just in case you end up being wrong about the diagnosis (which again doesn’t detract from what you’re suffering from, it just might need a different label for example).

    • weird_alt@lemmynsfw.comOP
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      20 days ago

      Fair, although I also did mention that I’m still in the process of getting a diagnosis. Otherwise you wouldn’t have known to bring this up. To me personally it feels like I would be tiptoing around reality if I kept on saying I likely have it. I used to for a long time, but that internal uncertainty also kept me from actually pursuing any change

      • Chairman_Meow@lemmynsfw.com
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        20 days ago

        Yeah I fully understand your position here. I think you’ve been transparent about your situation. The biggest risk ofc is people only reading the title and then skipping straight to the comment section, but I personally don’t regard it as that big of a risk.

        “The process of getting a diagnosis” is very long though, and we of course can’t exactly tell whereabouts you’re at at the moment. Is it final deliberations, first questionnaire, or are you still exploring where to even ask for a diagnosis, etc… It sounds like you’re further along, but I can understand the first person who commented in this chain to be a bit apprehensive when people state “I have X”, only to then in the proverbial fine print mention that “they’re getting a diagnosis”, whatever that might mean.

        Speaking of, how far along with the process are you?